{"id":5834,"date":"2020-02-28T07:54:16","date_gmt":"2020-02-28T06:54:16","guid":{"rendered":"http:\/\/www.blog.neoprog.eu\/?p=5834"},"modified":"2020-02-28T07:54:16","modified_gmt":"2020-02-28T06:54:16","slug":"midas","status":"publish","type":"post","link":"https:\/\/www.blog.neoprog.eu\/index.php\/2020\/02\/28\/midas\/","title":{"rendered":"Midas"},"content":{"rendered":"\n
\"\"<\/figure>\n\n\n\n

Je ne vais pas vous parler de mythologie grecque ou de pot d\u2019\u00e9chappement mais du score Midas qui permet d\u2019\u00e9valuer le handicap li\u00e9 aux c\u00e9phal\u00e9es.<\/p>\n\n\n\n

Il y a quelques mois, j\u2019ai install\u00e9 l\u2019application MigraineBuddy sur mon t\u00e9l\u00e9phone pour suivre de mani\u00e8re plus rigoureuse mes crises de migraines. En effet, dans un mois, j\u2019ai rendez-vous au centre anti-douleur pour ma premi\u00e8re consultation. Cinq mois d\u2019attente…<\/p>\n\n\n\n

L\u2019outil permet de noter les crises, les sympt\u00f4mes, leur dur\u00e9e, les m\u00e9dicaments pris, le type de douleur, les produits qui soulagent etc, etc…\u00a0<\/p>\n\n\n\n

Il synth\u00e9tise ensuite les r\u00e9sultats et vous donne un bon aper\u00e7u de votre souffrance au quotidien. C\u2019est \u00e9galement un lieu d\u2019\u00e9change avec d\u2019autres malades qui partagent leurs exp\u00e9riences.<\/p>\n\n\n\n

Dans l\u2019application vous trouvez des informations sur les derni\u00e8res avanc\u00e9es de la recherche, un message \u00ab bravo vous n\u2019avez pas eu de migraine depuis trois jours… \u00bb, et des statistiques dont le fameux score Midas.<\/p>\n\n\n\n

Je n\u2019y avais jamais pr\u00eat\u00e9 attention jusqu\u2019\u00e0 il y a quelques jours et une fois que j\u2019ai vu le mien, j\u2019ai voulu savoir ce qu\u2019il signifiait et s\u2019il avait une quelconque valeur. Car voyez-vous, mon score Midas est \u00ab handicap s\u00e9v\u00e8re \u00bb, la valeur la plus \u00e9lev\u00e9e. Chic !<\/p>\n\n\n\n

Le score se base sur le nombre de jours pendant lesquels vous avez manqu\u00e9 le travail, vous avez eu une activit\u00e9 r\u00e9duite, vous avez renonc\u00e9 aux relations sociales, sorties etc.<\/p>\n\n\n\n

Sur 175 jours de mesur\u00e9s, j\u2019ai \u00e9t\u00e9 en incapacit\u00e9 totale 5 jours (dans le lit dans le noir \u00e0 vomir mes tripes en me tapant la t\u00eate contre le mur) et 22 jours en incapacit\u00e9 partielle (zombie le temps que les m\u00e9docs agissent et comateux le reste de la journ\u00e9e, avec les effets secondaires des m\u00e9dicaments le lendemain). Bref un jour sur sept la t\u00eate dans le sac.<\/p>\n\n\n\n

Handicap s\u00e9v\u00e8re \u00e7a fait lourd \u00e0 assumer surtout quand sortis de vos proches, peu de gens en ont conscience.<\/p>\n\n\n\n

J\u2019ai de la \u00ab\u00a0chance\u00a0\u00bb, le plus souvent les crises se produisent le week-end. Quand elles arrivent au travail, je ferme mon bureau, clos les stores et pose la t\u00eate sur le clavier en priant pour qu\u2019une coll\u00e8gue trop parfum\u00e9e ou un fumeur n\u2019entrent pas dans bureau pour me demander quelque chose. Sinon pizza garantie. Je n\u2019ai eu des crises que deux ou trois fois lors de d\u00e9placements en voiture, inutile de vous expliquer que le retour fut compliqu\u00e9 \u00e0 chaque fois, tr\u00e8s compliqu\u00e9.\u00a0<\/p>\n\n\n\n

Mes coll\u00e8gues m\u2019ont dit plus d\u2019une fois d\u2019aller chez le m\u00e9decin. Ben d\u00e9j\u00e0 il faut r\u00e9ussir \u00e0 y aller, et rester dans une salle d\u2019attente bond\u00e9e pendant deux heures avec la naus\u00e9e, la t\u00eate pr\u00eate \u00e0 exploser, la lumi\u00e8re qui vous transperce les yeux, les odeurs des autres malades qui vous soul\u00e8vent l’estomac et l’envie irr\u00e9pressible de frapper le bonhomme qui discute sur son portable tant le bruit vous insupporte, tout cela pour mendier un jour d\u2019arr\u00eat maladie non rembours\u00e9 (le fameux jour de carence vous savez). Les jours catastrophes, je rentre \u00e0 la maison, raccompagn\u00e9 par un coll\u00e8gue un peu effray\u00e9.<\/p>\n\n\n\n

Handicap s\u00e9v\u00e8re ? Il n\u2019exag\u00e8rent pas un peu l\u00e0 ? Hormis une crise par semaine, une pr\u00e9-crise et une post-crise, il me reste quatre jours pour profiter de la vie lorsque je n\u2019en fais pas deux attaques par semaine. Ils dramatisent un peu quand m\u00eame…<\/p>\n\n\n\n

MigraineBuddy est une application quasi indispensable pour les migraineux comme moi. Elle permet de tenir un journal de ses crises qui sera utile aux m\u00e9decins lors des consultations. Avant je tenais un journal impr\u00e9cis de mes migraines, avec uniquement le suivi des dates et les degr\u00e9s de douleurs. <\/p>\n\n\n\n

L’application nourrit \u00e9videmment les laboratoires pharmaceutiques en informations sur les malades atteints de cette pathologie et j\u2019ai sans doute accept\u00e9 de livrer mon cerveau \u00e0 des chercheurs lorsque j\u2019ai coch\u00e9 les conditions g\u00e9n\u00e9rales d\u2019utilisation.\u00a0Mais au point o\u00f9 j’en suis, comme dans Le Sens de la Vie, ils peuvent venir le chercher de mon vivant ce cerveau. J’en fais don.<\/p>\n\n\n\n

Il lui manque cependant une fonction essentielle \u00e0 MigraineBuddy : celle de comptabiliser le nombre de billets de blog r\u00e9dig\u00e9s en phases pr\u00e9 et post migraineuses. L\u00e0, en deux jours de crises, j\u2019ai pondu quatre billets. Y aurait-il un lien de cause \u00e0 effet ? <\/p>\n\n\n\n

Je vais arr\u00eater le blog pour voir si il y a un rapport comme j\u2019ai arr\u00eat\u00e9 le gluten, le sucre, la caf\u00e9ine, le sexe, l\u2019alcool, le chocolat, les bombons, les triptans, la drogue, le lait, les mati\u00e8res grasses, le sport sur des conseils avis\u00e9s de personnes voulant trouver une cause \u00e0 mon handicap s\u00e9v\u00e8re.<\/p>\n","protected":false},"excerpt":{"rendered":"

Il y a quelques mois, j\u2019ai install\u00e9 l\u2019application MigraineBuddy sur mon t\u00e9l\u00e9phone pour suivre de mani\u00e8re plus rigoureuse mes crises de migraines. Continuer la lecture →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":5835,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"image","meta":{"footnotes":""},"categories":[59,136,610],"tags":[1545,1544,1546,1541,1543,1542],"class_list":["post-5834","post","type-post","status-publish","format-image","has-post-thumbnail","hentry","category-humeur","category-medecine","category-science","tag-application","tag-hopita","tag-migrainbuddy","tag-migraines","tag-suivi","tag-traitements","post_format-post-format-image"],"yoast_head":"\nMidas - Le Blog du N\u00e9oprog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.blog.neoprog.eu\/index.php\/2020\/02\/28\/midas\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Midas - Le Blog du N\u00e9oprog\" \/>\n<meta property=\"og:description\" content=\"Il y a quelques mois, j\u2019ai install\u00e9 l\u2019application MigraineBuddy sur mon t\u00e9l\u00e9phone pour suivre de mani\u00e8re plus rigoureuse mes crises de migraines. 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